Status for http://www.survivingprostatecancerwithoutsurgery.org/

pithy

Member
Joined
Aug 29, 2004
Messages
8
We are requesting that http://www.survivingprostatecancerwithoutsurgery.org/
be considered for listing in DMOZ. The eventual plan is for the site to be a non-profit organization. The site currently hosts a message board and documents pertaining to prostate cancer, and reports on a new book, which teaches men evidenced-based medicine and less harmful options for prostate cancer.
http://www.survivingprostatecancerwithoutsurgery.org/
The author of the book, used a previous book, The Prostatitis Syndromes, to fund a non-profit foundation called the Prostatitis Foundation (prostatitis.org).
 

bobrat

Member
Joined
Apr 15, 2003
Messages
11,061
It's in the heap waiting for review.

The funny thing is that I remember someone asking about this site before, but I can't find any posts in the forum. Did you ever ask here previously?
 

pithy

Member
Joined
Aug 29, 2004
Messages
8
http://www.SurvivingProstateCancerWithoutSurgery.org

I did not post about www.SurvivingProstateCancerWithoutSurgery.org before, so it wasn't me that you might have remembered. But, I have become a fan of the site's information and hope that you will eventually review and approve the site. How long is the wait now?
 

pithy

Member
Joined
Aug 29, 2004
Messages
8
http://www.SurvivingProstateCancerWithoutSurgery.org

bobrat said:
It's in the heap waiting for review.

The funny thing is that I remember someone asking about this site before, but I can't find any posts in the forum. Did you ever ask here previously?

Dear DMOZ,
Please, hasn't enought time gone by now to accept the very worthy site:
www.SurvivingProstateCancerWithoutSurgery.org into the system?
As a man concerned about prostate cancer, I do not think that there is a more important site than this one based on evidence-based medicine and randomized controlled trials.
The site has apparently been in your system since August 2004, or since January 2005.
Many men will remain unware that the radical prostatectomy for prostate cancer has failed to extend overall survival in two randomized controlled trials if this site does not get indexed. Surgery is being pushed for men although controlled studies show that it does not work to extend life, but does cause penile shrinkage, impotence, incontinence, and urinary strictures.
Please consider this worthy site for indexing.
John Pithy
 

bobrat

Member
Joined
Apr 15, 2003
Messages
11,061
Your point may be correct, and these things are important. However, the posting guidelines ask that you wait six months between posts. This keeps the traffic on the forum to a reasonable level.

All editors have a choice about when and where they work. I made a concious decision to answer your post. But by doing that, I took time away from reviewing sites related to rare genetrc diseases - so you see the dilemma we face. I also want to review sites dealing with fibromyalgia - but somtimes I have to work and sometimes I have to sleep - and there is a limit to how much I can review. You have to hope someone wants to review books on prostate problems.

[I'm not being sarcastic - I am in fact reviewing that type of site]
 

oneeye

Member
Joined
Aug 2, 2002
Messages
3,512
I have a problem with this site - at least in the 60 seconds or so it would take me to decide whether to look deeper for something listable.

A site worthy of listing contains original unique material of value to our users. What I see on this site are marketing words to sell a book.

Believe me I have searched the Internet for information on prostate cancer for personal reasons and this site tells me very little compared with dozens of others. I am not saying the unique information isn't there, perhaps the articles can't be found on other sites, I haven't checked. But the overall impression of the headlines on the site is book marketing. The site is about surviving without surgery but I see nothing clear and obvious where I can read the detailed content regarding this on the site instead of buying the book.

I am not at all sure the DMOZ should exist as a marketing tool for book sales, profiting from cancer when so much free information is available. There again I come from a country where money does not enter into cancer treatment - you are diagnosed, you are treated, no charge no matter how much it costs, so maybe this is influencing my concerns.
 

hutcheson

Curlie Meta
Joined
Mar 23, 2002
Messages
19,136
pithy, a warning: do not use this site to shill your site. You may request a status -- at the appointed time. But we will not discuss with you why it either will be or has been deleted.
 

bobrat

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Apr 15, 2003
Messages
11,061
I did not look at the site before - but my opinion is that the site may not listable regardless of the web site's merits or lack thereof.

It's currently awaiting review in Shopping/Publications/Books/Health/Conditions_and_Diseases/Cancer/Specific_Titles

Sites in Shopping must sell things - this is a promotion site for the book and does not sell it - but points to Amazon..
 

oneeye

Member
Joined
Aug 2, 2002
Messages
3,512
Ah, I didn't realise it was submitted to Shopping although as you say the Shopping criteria would not cover an Amazon affiliate link.

It is a pity - there are some great sites out there that give a huge amount of comprehensive and free no-strings information on prostate cancer. But if I wanted to buy a book to find out more I wouldn't use DMOZ in any case, I'd go to Amazon and use their search engine.
 

pithy

Member
Joined
Aug 29, 2004
Messages
8
Is it possible that you guys are being overly harsh? There is a list of articles in the left column of SurvivingProstateCancerWithoutSurgery.org that all offer unique content and I list the article titles below. As far as I know, Dr. Hennenfent, was the first doctor to every come out and say that most prostate cancer surgery was unnecessary, like years before we found out that most hysterectomies were unnecessary. He backs this up with randomized, controlled studies. There may be free information on prostate cancer available, but the information about what a hoax surgery is was not available until this doctor came along. I don't think it's a problem to sell a book, I think it's a credential, not a problem, in this case, as I read the book, and it has over 200 references to studies. I find it disheartening that a new, apparently correct theory based on hard science, would be censored without anyone actually reading the unique content of the site. So, I hope the final reviewer gives the site its due. Thanks for all the hard, volunteer, work. Maybe I will email the site to take the book down, although why would they listen to me? I don't think the site belongs under shopping; it belongs under men's health. Besides the articles, the content of the message board should be considered. Where else can a patient get some free medical advice with a physician answering your questions? The articles:

Charles Myers, MD

At First

Australian CCC

2 Randomized
Controlled Studies

Holmberg's RCT

Prostate Surgery
Spin

Cognitive Dissonance
and the
Radical Prostatectomy

Cure

Stamey PSA
is Over

Catalona’s
Failure Rate

PSA Less than 4

RP Failure

Finasteride For
Prostate Cancer

PSA Screening and
the Radical
Prostatectomy

Prostate Cancer
Research Institute

Prevention Trial

Time Magazine
Quote

Peenuts® and
Prostate Cancer

Peenuts Statistical
Analysis

Prostate Cancer
Managed through
Diet and Nutrition

Dr. James Wong’s
Radiation

Hormesis

Better Together?
--
John
 

pvgool

kEditall/kCatmv
Curlie Meta
Joined
Oct 8, 2002
Messages
10,093
This is not the place to tell us why we should list your site and where the unique content can be found. We will decide to list the site or not purely based on what we can find at the site. And very probably the editor that will do the reviewing isn't reading this forum.
You may only use this forum to ask for the status of your suggestion at the appropriate time (which is 6 months after the last status was given - February 23, 2005, 08:07 AM ).
Please do not make any more postings before that date.
 

oneeye

Member
Joined
Aug 2, 2002
Messages
3,512
Reading pithy's comments, I don't think this is his site, just one he is a fan of. Is that correct pithy?

It doesn't matter though, the same rules apply no matter who the submitter of a suggestion...
 
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